A Memoir of a Mother’s Determination and Her Micro Preemie’s Struggle to Beat the Odds
I am once again proud to be a member of The Morgan Leary Vaughan Fund’s Board of Directors because today we sponsored our second education lecture at UConn Health in Farmington, Connecticut entitled “Influence of Gut Bacteria and Human Milk on Neonatal NEC”, as part of their Pediatric Translational Research Seminar Series.
Today’s lecture featured two of our Scientific Advisory Board members: presenter Dr. Michael Caplan and host Dr. Adam Matson. Stephanie Vaughan (President and Co-founder of The Morgan Leary Vaughan Fund) gave a heartfelt introduction into why she started The Morgan Leary Vaughn Fund and how Necrotizing Enterocolitis (NEC) has affected her family since her twins were born prematurely six years ago. You can read Stephanie’s story HERE.
Stephanie’s introduction was followed by Dr. Michael Caplan’s educational (and entertaining!) lecture on how human milk and probiotics may be helping to reduce the amount of premature babies afflicted with NEC.
In premature infants, breast milk feeding is associated with reduced infections and inflammatory diseases such as Necrotizing enterocolitis. NEC is a very serious disease where the intestinal tissue is injured or begins to die off and then a perforation occurs that allows bacteria and waste products to enter a baby’s blood stream. This very often leads to surgery requiring sections of the bowel to be removed and in many cases (about 40%) can lead to death. As more and more babies are surviving births at earlier gestations we must take a larger look into how to prevent this devastating disease and give our future premature babies a better chance at survival.
Dr. Caplan took us through the history of NEC and some of the original studies regarding different theories on what causes NEC and some ways it was treated in the past. He then showed us evidence from various clinical studies on how human milk diets and exclusive human milk diets (including fortifiers made from human milk) are showing some promise reducing the number of cases of NEC in premature babies. Dr. Caplan also showed us some studies on how probiotics are influencing the number of cases of NEC, but he was very careful not to endorse any particular strand or combination of probiotics as they all can have negative side effects because the physiology of each and every baby is very different.
Dr. Caplan endured quite a trip after canceled flights and long Uber rides to get to us and we are very thankful he came. He even showed up with a smile!
Below are a few of Dr. Caplan’s slides for you to view so that you get a feel of what was being discussed.
The Morgan Leary Vaughan Fund was proud to sponsor today’s event at UConn Health and we look forward to future collaborations.
The Morgan Leary Vaughan Fund (Morgan’s Fund) is an all-volunteer, public charity dedicated to Necrotizing Enterocolitis (NEC). Our mission is to promote public awareness about NEC and the potentially devastating effects it can have on preemies and their families, and to advance research to prevent, diagnose, treat, and ultimately cure NEC.
Thank you for your support!
Below is a guest post by preemie mom and writer/blogger Carrie Willard.
It’s been a busy year and a while since I shared a guest blog post and I’m so excited to share this one because I admire Carrie for many reasons.
I hope you enjoy it.
“My seventh child was a preemie. Unlike my first seven pregnancies and births, which were uneventful and natural, this one was traumatic right from the start. We experienced multiple threatened miscarriages, bleeding and finally a rupture of membranes (PPROM) at 21 weeks. There were weeks of bed rest and hospitalizations, culminating in an emergent C-section and 11 week NICU stay for my little one.
My son is now 2 and thriving. I’m finally healing from the anxiety and fear I felt during that time, and feeling like my old self. Only, I’m different. My preemie taught me a few things.
One – It’s ok to do nothing.
I’ve always been a productive person who struggled to sit still. Visiting my tiny baby in NICU was an exercise in patience and stillness. It took nurses up to 45 minutes, sometimes longer if they were busy, to untangle my son’s leads and place him down the front of my shirt for kangaroo care. Then I dare not move lest his alarms begin blaring. Sitting and holding my son and bonding with him, giving him the gift of my presence and savoring his, was the most important thing I did all day, though it looked like nothing.
Two – Boundaries are good.
I gained a new appreciation for boundaries as I watched the NICU nurses carefully strap my sweet-potato sized newborn into a “snuggly” in his isolette, keeping him still and giving him a feeling of stability and safety. As his tiny legs kicked against the boundaries and found a wall of resistance, he began to learn what was him, and what was not him. The locked doors of the NICU, visitor rules and the hand-washing rituals also provided boundaries for well-being of its inhabitants.
Three – Patience – a virtue learned through adversity.
The mom of a preemie is told no over and over again. No, you can’t get out of bed. No, you can’t see your baby yet. No, you can’t hold your baby yet. No, you can’t put the baby to your breast. Those final days and weeks as your preemie looks like a “normal” full-term newborn are torturous. Your longing to have your baby home is palpable, but it’s not safe for your child to leave the hospital yet. Just when I thought I could wait no longer, I got a fresh length of patience handed to me, like a few more feet of rope.
Four – it’s ok to need help.
Early on in our NICU journey, recovering from a C-section, dizzy, exhausted and in pain, I would arrive into the NICU and collapse into the nearest nurse’s arms in a cascade of tears. It’s unlike me to show emotion in public, so this was not normal behavior for me. Struggling to bear up doesn’t mean you’re not strong. It means you need help. And that’s ok. Without the help of my husband, my older children, my friends, family and worship community, I wouldn’t have survived the experience as well as I did.
Five – Let go of unrealistic expectations and just do your best.
One of the most difficult things I had to accept about my son’s birth was the fact that he needed supplemental formula to gain weight. As a die-hard lactivist and former breastfeeding counselor, I knew what I was doing when it came to breastfeeding. My body may have betrayed my son by not keeping him in my womb for 40 weeks, but by golly I was going to nurse my baby! After a difficult period in which I experienced hot anger, shame and grief, I accepted a new normal. When I decided it was ok to give my son formula because he needed it, I felt peace. I used a Lact-Aid supplement to protect my milk supply and so my son would not develop a preference for bottles. (And I’m happy to report that he is still nursing at 2, and is long weaned from supplemental formula, something that makes me very proud!)
And finally, I come to the sixth point: Mothering is not all about me.
I didn’t want to give birth prematurely. I didn’t want to have to leave my son day after day in the NICU. I didn’t want the nightmares, the anxiety, the post-traumatic stress, the intense shame, the anger, the interruption of bonding with my newborn, the formula, the grieving of normal. But I don’t get to choose. Mothering is about holding a child’s hand as they walk down their path. It’s not about me.”
Carrie Willard is a homeschooling mom of 7 curious kiddos. She encourages moms to make time for their passions, goals and dreams during the busy child-rearing years at http://www.CarrieWillard.com/maketimeforyou
Check her out online!
Thanks for reading.
Having a baby in the Neonatal Intensive Care Unit (NICU) is emotionally challenging on a regular day, but add the holidays into the equation and it might be too much to handle!
My daughter spent 121 days in the NICU following her micro preemie birth at 23 weeks gestation. Since then I have made it my mission to help other parents who are struggling through their journey with prematurity.
Many parents wonder how they can possibly get through the holiday season with their baby in the NICU and not at home with them.
Below are 8 ways to help you celebrate the winter holidays with your NICU baby:
1. Hand write your Christmas cards and use them as Thank You cards
Whether your baby is spending most hours in an isolette or crib, you will have plenty of time to write. This is a great opportunity for you to thank people for their kindness. Some might have dropped off food, done your dishes, babysat, or just left you a supportive message.
2. Decorate your baby’s isolette or crib
Hang some ornaments or a wreath (not real pine!) over the isolette/crib. You could also decorate with some garland and tape up a few holiday cards. Why not take a picture of your home Christmas tree or Menorah and tape that to the wall also?
You could arrange Skype sessions with your family so that they can see your baby on Christmas or Hanukkah. You may need permission from the NICU nurses to do it, but it might be fun to have your family sing Christmas carols to your baby or just wish your baby a Merry Christmas or Happy Hanukkah.
4. Read your favorite holiday classic story to your baby
Babies love to be read to and studies show that it helps their brains develop and relaxes them so that they grow faster. Who wouldn’t want their Mommy or Daddy to read them a holiday book? This will also help you feel more in the holiday spirit.
5. Decorate preemie sized onesies for your baby to wear
If you have children at home, go buy a few preemie sized onesies and a few fabric markers at Toys R Us and decorate the shirts. It’s a great way for siblings to give a gift to their new baby brother/sister and they will also feel included. If your baby can’t wear cloths yet, make them anyway so that your new outfit can be the first one they put on!
6. Open gifts
Bring a few of your baby’s gifts to the NICU on Christmas Eve/Morning or on each day of Hanukkah and open them! There is no reason why you can’t do that to keep with your holiday tradition.
7. Bring some cookies/dreidels/latkes for the NICU staff
Whether you just met the NICU staff or have known them for months- they are your baby’s parents when you can’t be there and they will be there for you too. Wouldn’t it be nice to share the giving season with them and bring them some cookies or something else that shows them how thankful you are for them? Plus, you will get to celebrate with them and participate in one of your holiday traditions.
8. Celebrate New Year’s at noon
Bring some party hats and noisemakers to the hospital but don’t blow them! Put them next to your baby in the isolette/crib and take some pictures. These photos will be cherished for years to come. Plus, they represent a new year full of possibilities and promise and that’s what all NICU parents need. Then do your own New Year’s Countdown at NOON!
This originally appeared on my Huffington Post Parents page:
It was also a nice distraction from the presidential election!
But in all seriousness, November is National Prematurity Awareness Month and November 17th is World Prematurity Day so the timing of the PPA Summit could not have been better.
Inova Children’s Hospital was gracious enough to allow our organization to take over it’s main conference space to hold our PPA Annual Summit. They even gave us guided tours of their new state of the art NICU (Neonatal Intensive Care Unit). It’s a beautiful hospital.
What is the Preemie Parent Alliance (PPA)?
The Preemie Parent Alliance (PPA for short) is a network of organizations offering support to families of premature infants. To ensure best outcomes for preemie families, the Preemie Parent Alliance is dedicated to representing the needs and best interests of preemie families in all facets of healthcare policy, care guidelines, advocacy, education and family support. As a national network we are establishing a unified parent voice to advocate for infants, who cannot speak for themselves, and their families. Together, we represent thousands of NICU and bereaved families across the country.
The PPA is committed to providing opportunities for emerging preemie parent leaders to enhance their leadership skills, improve support for families, and increase their involvement in all facets of healthcare policy, care guidelines, advocacy, and education.
Click HERE to learn about the PPA Members and what organizations they represent.
What is the PPA Summit?
The Preemie Parent Summit is the only two-day event focused on organizations supporting families in Maternal Infant Health, a field of healthcare long dominated by professional provider associations & legislators. About 90% of attendees are founders and executive directors of NICU parent support organizations from across the United States. Our members work in local, regional, and national capacities with NICU families along the continuum of care from high risk pregnancy to life after the NICU. The remainder 10% of our audience is made up of other Maternal Infant Health stakeholders, providers and industry leaders.
What happens at the PPA Summit?
The PPA Summit is the place where preemie parents, directors of support programs, preemie product innovators, authors and stakeholders all assemble to learn ways to better serve the NICU population and community, as well as collaborate on how this can be done by making partnerships and alliances to further our common goals.
The PPA Summit Pre-Conference included “The Advocacy Training Workshop” and “Training the Trainers: How to Equip Your Organization’s Peer-to-Peer Mentors Utilizing Best Practices”.
“The Advocacy Training Workshop” was hosted by the National Coalition for Infant Health and it was very helpful to me to learn how to better spread awareness about the issues I feel are important. Since I have spoken at a few Congressional Briefings in Washington D.C., and I hope to continue to do so, it was advantageous for me to participate in this workshop. You can read about my experiences speaking to Congress HERE and HERE.
“Training the Trainers” was hosted by Lisa Grubbs of NICU Helping Hands and the goal was to teach leaders and members of NICU Parent Mentor Support Groups the skills and tricks on how to better prepare their mentors to give the support needed to help NICU parents. The group also discussed how to work with the NICU nurses and neonatologists better so that more parents can be reached. Although I did not sit in on this session, I heard it was very good!
After the Pre-Conference workshops we all gathered in the Hyatt House Hotel to attend the “Welcome Reception” and networking activity. We were asked to sit with another member of a different organization and speak about what we do and what we would like help with- as far as making our reach and impact more successful. It was fun!
Our next day began with opening remarks from Keira Sorrells (President of both the PPA and the Zoe Rose Memorial Foundation). She always sets the tone of the Summit and reminds us all why we are sitting together.
Next, our Keynote Address was done by Theresa Nguyen of Mental Health America. She discussed the necessary task of self-care and how we can guide other preemie parents to take time to themselves and reboot so that they are better prepared to handle the roller coaster of the NICU.
After a short break, Shawnee Bigelow (President and Founder of The Starling Company) spoke to us on how to build alliances and form coalitions with other organizations so that we all reach the most parents and hospitals possible. She had some great advice!
Before lunch we assembled to listen to “Perspectives in Neonatal Health: Research, Legislative & Industry Panel”, hosted by Carolyn TenEyck of Prolacta Bioscience, Darby O’Donnell of Alliance for Patient Access and Lisa Klein of Inova Translational Medicine Institute. We all learned a lot about what’s being done on the research and industry side of neonatal health, as well as the legislative side.
After lunch we were separated into Breakout Tracks, split into two different rooms. I attended “NICU Expert Podcasts: Filling the Informational Gap of Preemie Parents”, hosted by Stephanie Vaughan (President and Founder of The Morgan Leary Vaughan Fund– of which I am a proud member of their Board of Directors). I was honored to introduce Stephanie and talk a little bit about what The Morgan Leary Vaughan Fund is and how we have raised money with the goal of research into treating and ultimately preventing Necrotizing Enterocolitis (NEC) in premature babies.
Once of the newest projects that The Morgan Leary Vaughan Fund recently completed is a podcast series called “Speaking of NEC”. It’s a series of interviews with relevant NEC experts (both physicians, nurses and parents) where various aspects of Necrotizing Enterocolitis are discussed. Stephanie shared how she created the podcast series and she also had the producer (Jeff Bradbury of JeffBradbury.com) Skype in to assist. This 12 episode podcast series can be found HERE on The Morgan Leary Vaughan Fund’s website and also on iTunes.
Unfortunately I could not attend the other Breakout Session at the same time, but I heard that Dr. Sue Hall was inspirational when speaking on “A Roadmap to Improving Your NICU”. Many people left there with new ideas and heightened motivation to bring back to their hospitals.
Our last informational sessions for the day were also Breakout Sessions and I had to choose one to attend. I decided to attend “Pregnant Women, Drug Use & NAS: Separating Fact from Fiction” hosted by Erika Goyer of the National Perinatal Association. It has always been an interest of mine. During my daughter’s 4 month stay in the NICU I witnessed many babies born addicted to various types of drugs and listened to them cry. Some were never held by their mothers and were discharged to Social Services. It always broke my heart and I have been searching for answers as to why this happens. Erika gave an eye-opening discussion on the real issues and what those of us involved in the NICU can do to help these babies and their parents.
Because of my choice of Breakout Session I had to miss “Funding Your Mission” by Jennifer Sharp of Bazelon Center for Mental Health Law. This was a great choice for leaders of nonprofits and I heard that it was very helpful.
Our day ended with a beautiful ceremony called “Celebrating Our Babies” where each attendee had a bag with a lit candle and was asked to “Celebrate” their preemie’s life- no matter the length.
It really was a beautiful sentiment. I found myself in the same position as I often do, with a type of “Survivors Guilt”. While I am so very blessed that my daughter Joy is with me today, and without any major complications from her premature birth, I often feel guilty about sharing her/our success story when in the company of so many parents who grieve the loss of their premature baby. This is something that I struggle with, and have written about in the past, but in the supportive environment of the PPA, I had no worries about judgement. Not with this beautiful group of people.
That evening we celebrated our friendships and efforts over a casual but delicious dinner (and drinks!) at Paladar Latin Kitchen and Rum Bar. We had a chance to unwind and gear up for the next morning.
Our last day opened with a “PPA Members Only Meeting” where Shawnee Bigelow from The Starling Company asked us to evaluate our membership and what we are doing to form alliances with other organizations and what we may want from the Preemie Parent Alliance.
Next Jenne Johns (author of Once Upon a Preemie) talked to us about “Health Disparities, Equity and Cultural Competency in the NICU: Challenges and Opportunities”. She gave us some great information on how to better help NICU who may not be represented well in the NICU and are in need of support.
I have to add that Jenne recently published a children’s book titled “Once Upon a Preemie” and it’s wonderful! I had the pleasure of spending some time with her during the Summit and I cannot wait to collaborate more with her. Check out her book! You can find it HERE.
Before lunch we once again had to choose Breakout Session and I attended “Allies After the NICU: Alone We Are Rare, Together We Are Strong” with Mary Midolo of The Morgan Leary Vaughan Fund (Morgan’s Fund) and Melanie Gibson of the National Organization for Rare Disorders (NORD). I once again had the pleasure of introducing the speakers and sharing some of the work Morgan’s Fund has done with NORD. Mary and Melanie spoke about the partnership (alliance!) that Morgan’s Fund and NORD has made to create The Living History Registry for patients diagnosed with Necrotizing Enterocolitis (NEC) and how this partnership and project with help many future babies and adults who have been diagnosed with NEC. Maybe it will even help figure out ways to predict and prevent it in the future! That would be great! The registry should go live in December so stay tuned to www.morgansfund.org.
The Breakout Session I was unable to attend was called “Social Media: The Digital Watercooler” and it was hosted by Haley Steinkuhler of Connected Forever. I was told that the attendees learned how to use social media to further their goals for their foundations and reach more NICU parents.
After lunch we all attended “Perspectives in Neonatal Health”- a panel discussion involving Robin Baker (Inova neonatologist), Sara Donahue (March of Dimes NICU Family Support), Lynn Hardy (Innova NICU Nurse and Educator) and Christine Tran (Inova NICU Social Worker) and moderated by Danielle Bischoff (Preemies Today). It was host to a lot of engaging conversation on how to better support NICU parents and better take care of our neonatal population as a whole.
Our last session was called “Navigating the Education System as a Preemie Advocate” by Tracy Pella (Connected Forever). Here Tracy spoke to us about how to make sure we call got the necessary services for our children. She taught us about education reform and law and where to look for the resources and support we need to best serve our babies as they grow through school.
That’s it in a nutshell! Except it the Annual PPA Summit was more than just a series of lectures and breakout sessions. It truly was a place to meet with old friends and make new ones, as well as a safe place to speak to people who understand what it’s like to have a premature baby and navigate the NICU life and post discharge life. It was also a place to cry and laugh and form new alliances.
What is the PPA’s Mission? Great question…
The Preemie Parent Alliance (PPA) stands alone as the only national network of support organizations serving families who find themselves with a critically ill infant in the Neonatal Intensive Care Unit (NICU). Our unique member organizations are all led by parents who have had the traumatic experience of giving birth to a baby weeks before they should have, in a manner they did not expect. To ensure best outcomes for preemie families, the Preemie Parent Alliance is dedicated to representing the needs and best interests of preemie families in all facets of healthcare policy, care guidelines, advocacy, education and family support.
I think the PPA successfully works towards it’s mission each and every day.
I have to mention that the PPA Summit would not be possible without Cristal Grogan. She is the woman behind the scene who runs it all. Thank you Cristal!
I also want to thank the planning committee: Danielle Bischoff (Preemies Today) Tanya Clay (Hand to Hold), Deb Discenza (Preemie World), GiGi Khonyongwa-Fernandez (Families Blossoming), Cristal Grogan (NICU Helping Hands), and Julie Howard (Northwest Printed Apparel). They worked tirelessly to make sure the event was a worthwhile experience for all.
I have to thank Keira Sorrells (President of PPA) for her efforts to keep the summit going each year and ensuring that our presentations are engaging and relevant to all of the PPA members and attendees. She works for the success of each PPA Summit- all while simultaneously maintaining the Zoe Rose Memorial Foundation. Thank your Keira!
And last, I’d like to thank every person and organization that attended the PPA Summit because it would not happen without attendance; Connected Forever, Courageous Steps, Eli Collins Foundation, Families Blossoming, Graham’s Foundation, Hailey’s Hope Foundation, Hand to Hold, Holding Tiny Hands, Keep Em Cookin, Lily’s Hope Foundation, National Perinatal Association, Little Giraffe Foundation, NICU Helping Hands, National Coalition For Infant Health, NEC Society, University of Utah Hospital, Pebbles of Hope, Preemies Today, Preemie World, Project Sweet Peas, The Morgan Leary Vaughan Fund, Will’s Way Foundation, The Tiny Miracles Foundation, Jenne Johns (author of Once Upon a Preemie), Kelley French (author of Juniper), and me Jennifer Degl (author of From Hope to Joy).
I can’t wait until next year’s PPA Summit. Where will it be held?
Please visit the PPA website to learn how you can get involved or join.
How are you spreading awareness for World Prematurity Day today?
Last weekend I had the honor and pleasure of being a Keynote Speaker at the 32nd Annual NANN Conference.
NANN stands for the National Association of Neonatal Nurses.
The conference was held in Palm Springs, California at the Renaissance Palm Springs and the weather was beautiful. But what was more beautiful were the NICU nurses I got to meet and spend time with.
For those of you who don’t know what NICU means- it’s the Neonatal Intensive Care Unit. This is where my daughter, as well remainder of the 10% of babies born prematurely every year, spend their first few weeks or months of life.
Before I discuss what I was speaking to them about, I want to explain what special people these NICU nurses are. These women (and some men, too!) not only help the neonatologists resuscitate our babies and keep them alive immediately after their premature births, but they do so much more.
According to study.com, the duties of a NICU nurse include administering medications, monitoring vital signs and providing vital nutrients to newborns. Because most premature and sick newborns’ lungs are not fully developed, NICU nurses must ensure that infants are breathing and maturing properly. These specialized nurses work with upper-level nurses and neonatologists and assist in treatment plans and examinations. They also keep, maintain and update records of the patient’s care. In addition to medical care, NICU nurses communicate with and educate parents on day-to-day operations as well as home-care procedures.
I can tell you that description only scratches the surface of what NICU nurses actually do for babies and their parents.
These angels on earth, as I like to call them, will hold our babies if we cannot be there; they will comfort them when they cry; they will sing to our babies to put them to sleep; as well as bath them and change their diapers- tasks that we wish we were doing ourselves, but are all too often not able to do because of our baby’s fragile (and often our own) medical conditions.
Most NICU nurses go above and beyond to make sure our babies are safe, happy and thriving. And NICU nurses often become our baby’s advocates when necessary- as far as the medical plan goes.
This is why it was an honor and privilege to be a Keynote Speaker at their conference.
Four years ago, after delivering my own premature baby at 23 weeks gestation, I was thrown into an unknown world of neonatal care. The NICU nurses soon became my teachers, friends and family.
We were tasked with sharing our own personal NICU experience and then offering advice on how the NICU nurses could make the discharge process emotionally easier on parents and how nurses can best help the parents prepare for discharge.
Both Natalie and Kara have their own journeys with prematurity and you can visit their websites (linked to their names above the photo) to read about them. They are two of the most beautiful women I know and I am lucky to have shared this experience with them. I’m in awe by their strength and determination!
Our Keynote Closing Session began with the President of NANN (Jean Grazel) discussing the importance of the parents in the NICU process. Jean Grazel is a certified advanced practice nurse with more than 30 years of neonatal nursing experience. She holds several clinical designations, including board-certified high-risk perinatal nurse, neonatal resuscitation program regional trainer, NANN neonatal developmental care specialist, and certified breastfeeding counselor. You can read all about Jean by clicking HERE. Then Heather Goodall (MSN, RNC-NIC, IBCLC) set the stage for our presentation and read each of our biographies to the audience. Heather also moderated the question and answer session at the end of our presentations. You can see the general outline for our presentations by clicking HERE.
What touched me the most was that all of these NICU nurses put aside time in their day and made it a priority to come to watch us speak- the parents of NICU babies. We (the parents) owe everything to these people and have the upmost respect for them- and yet they wanted to listen to us speak and offer them advice on how to help us more.
Overall, my experience as a Keynote Speaker at the 32nd Annual NANN Conference was both amazing and humbling. I got to share the stage with two other beautiful and strong NICU mammas, and I got to see first- hand how these NICU nurses really want help the family as a whole. They are not only concerned with saving and caring for our premature and medically fragile babies, but they also want to make sure that we all leave the NICU with as little bruises as possible.
There is no way to leave the NICU unscathed by our experiences after watching our babies (and often ourselves) endure so much pain and suffering, but I learned that the NICU nurses are always looking for newer and better methods to minimize it for us all.
Once again, NICU nurses are angels on earth!
Oh, and since I was in Palm Springs for the weekend, of course I took in some of the local sites! What kind of science teacher would I be if I didn’t visit the San Andreas Fault, Joshua Tree National Park and the mountains of San Jacinto State Park?
It’s a rhetorical question. Lol!
But seriously, if you have a story to share about a NICU nurse going above and beyond to make sure you have the best NICU experience and discharge possible, I would love to hear it. I have SO many!
Please share in the comments 🙂
Below is the reason I feel so passionate about raising awareness about premature births and NICU life.
Thank you your support!